My Cochlear Experience

By Barbara Delangre

At the age of 40, a sudden burst eardrum plunged me into a world of silence in my right ear. The onset of deafness brought with it an unexpected and unwelcome companion – tinnitus, a relentless symphony of ringing that echoed within me. At first, I brushed off the subtle signs, the gradual fading of sound that I tried to pretend wasn't happening. Perhaps it was denial, or maybe I simply underestimated the impact it would have on my life. I continued to function as best I could, navigating conversations and daily activities, but it was an uphill battle. As time passed, the realization that my hearing was slipping away became undeniable. The once vibrant auditory landscape around me transformed into a realm of muffled voices and muted melodies. It was a journey into the unknown, a realm where my world had shrunk to half its size, yet an experience that would reshape my perspective and teach me to appreciate the delicate symphony of life's sounds in ways I had never imagined.

In 2006, the subtle grip of Meniere's Disease began to take hold of my life. Its presence was initially faint, like a distant storm on the horizon, but by 2008, it unleashed its full force in a merciless attack of vertigo that sent me rushing to the hospital. That marked the beginning of a journey into the labyrinth of my own body. Sitting in the office of an ENT specialist, I clung to his every word as he uttered the perplexing term "Hydrops." The world of medical jargon and uncertainty was now my reality. The battle against vertigo became a daily struggle, fought through medications, cautious alterations in my diet, and the intricate Epley Maneuvers that seemed to provide fleeting moments of respite. Then came the day of reckoning, the fitting of my first hearing aid. A glimmer of hope amidst the adversity. However, as the audiologist placed the device in my left ear, the world around me suddenly expanded with newfound clarity, while the right ear, ravaged by Meniere's, remained unresponsive – a stark reminder of the imbalance life had dealt me. Determined to find answers, I sought solace in a neuro-otologist's office in North Sydney, hoping that amidst the labyrinth of medical appointments, a path to restoration might emerge.

Consult with Prof Bill Gibson

In 2010, a turning point emerged in my battle with Meniere's Disease when I transferred my care to Prof. Gibson. Faced with relentless "drop attacks" that had shackled my once vibrant lifestyle, I was eager for a solution. Prof. Gibson administered five gentamicin injections, a series of interventions that held the promise of relief. As the severity of my condition began to wane, a tantalizing decision lay ahead. The idea of a labyrinthectomy, a final bid to reclaim stability, loomed on one side, while the prospect of a cochlear implant, filled with uncertainties, presented itself on the other. It was a crossroads that demanded contemplation and courage. Amidst this contemplation, a unique opportunity emerged – an offer to participate in a research project exploring the criteria for cochlear implants in individuals with comparatively better hearing in one ear. The prospect of contributing to groundbreaking research while potentially finding a lifeline back to the symphony of sounds was both daunting and exhilarating, a pivotal juncture in my journey towards reclaiming the world of sound.

What made me decide to have a cochlear implant?

In December of 2011, my path led me to the Sydney Cochlear Implant Centre (SCIC), where pivotal moments awaited. Eleanor and Leanne became my guiding lights during this chapter. I underwent a battery of tests, each one a thread woven with great empathy as part of the study. The halls of SCIC echoed with the steps of individuals dedicated to restoring the melodies to lives like mine. Amidst the battery of tests, there was a prevailing sense of camaraderie and encouragement that enveloped me. Leanne, in particular, transformed into more than just an ally – she became my chief "chef" of progress, cooking up solutions with kindness and unwavering understanding, a master chef of not just hearing restoration, but of compassion and companionship on this journey of rediscovery.

OPERATION: 15TH JUNE 2012

A month preceding the operation, I dedicated myself to a regimen of balance exercises, a proactive step towards what lay ahead. Then, on a Friday that carried a mix of anticipation and trepidation, the operation unfolded seamlessly, leaving hope in its wake. However, as dawn broke the next day, I found myself grappling with the overwhelming whirlwind of emotions – a "basket case," tossed between moments of uncertainty and newfound possibilities. Astonishingly, recovery came swift and gentle, as if pain itself was a stranger to my body. By the following Wednesday, I ventured to a rehabilitation hospital, a realm of dedicated experts and unwavering determination. With each day that unfurled, my balance gradually embraced its old rhythm, like a long-forgotten dance coming to life once more. And as the week neared its end, I was met with the reassuring embrace of home, a testament to the resilience of the human spirit and the miracles that unfold when strength, hope, and skilled hands intertwine.

Switch ON

On the memorable Thursday of July 6th, the momentous day arrived when I was "switched on" – a gateway to a world of sound previously lost. The auditory landscape unfurled with slightly tinny notes, like echoes of a long-forgotten melody. Yet, the novelty was soon interwoven with challenges. The following Friday night, an unexpected bout of dizziness caused the processor to slip off, seemingly aided by my own ineptitude with the remote control. Frustration mingled with disorientation as I grappled with this new realm. By Saturday, the dizziness intensified, spiraling my worry to new heights, and in response, I sought solace within the sterile corridors of the hospital. A visit that unveiled no apparent issues, as if the vertigo was a phantom, dissipating slowly as days went by. Clarity finally dawned on the following Tuesday, as I returned to SCIC. There, the enigma was unveiled and the solution, a beacon of relief, was set forth. In the hands of experts, the disconcerting experience found its explanation, and the melody of life played on, ever more harmonious than before.

Hearing Now

Amid the journey of recovery, a lingering sense of mild, spasmodic dizziness had persisted, a whisper of unease. Prof. Gibson, with his reassuring wisdom, painted a picture of its eventual departure, a comforting balm to the disquiet. Miraculously, my once relentless tinnitus had vanished into thin air, leaving behind a newfound tranquility. About eight weeks after the "switch on," a symphony of transformation took place. The metallic echoes that had filled my world transformed into the sweet cadence of speech, an occasion that unleashed waves of boundless excitement. Friends and family, those closest to my heart, marveled at the transformation, their comments becoming a chorus of encouragement. The crescendo of improvement showed no signs of waning, as if every day held a promise of renewed discovery. In the face of the question – was it all worth it? The answer resounded with unwavering certainty: a resounding "YES!" And to the doubts of age that may have lingered, the answer was equally emphatic: "NO!" With renewed vigor and a zest for life, this journey proved that age held no dominion over the pursuit of dreams and the melodies of rebirth.

The future is full of sound